Hawaiian Woman Saves Her Passion For Art By Being The First To Take New Drugs

HONOLULU (HawaiiNewsNow) — Janelle Fiesta lives up to her name by celebrating every moment she spends drawing.

“I want to put smiles on other people’s faces,” Fiesta said.

His graphic design business, cute booty artsit’s his passion.

And it’s something she won’t give up, until she has to.

“Growing up, I was actually diagnosed with a condition called spinal muscular atrophy type 2,” she said. “Some parts of my body are not receiving messages properly, which means I am unable to move them.

“My muscles have slowly weakened to the point that I am no longer able to do many physical activities that the typical able-bodied person can do,” Fiesta said. “Because of that, I got a taste for the things that I could do physically. And one of those things was taking a pencil and scribbling on paper.

She started designing professionally a few years ago, around the same time she started seeing changes.

“I notice general drops where I couldn’t really lift my arms like I could do or grab things with my hands,” Fiesta said. “It was very scary because being able to create art is just a huge part of who I am. And having that taken away from me was something I didn’t want to face.”

It was also hard for his mother, Elvira Fiesta.

“It’s scary and hard to think about,” she said. “But Janelle always tells me, ‘Mom, just look at the positive result.'”

To save her passion, she was the first in Hawaii to take Evrysdi, a home treatment for spinal muscular atrophy intended to halt the progression of the disease. She saw changes right away.

“I was able to pick up like a glass of water and bring it to my mouth. Or that I was able to grab things easier,” Janelle Fiesta said. “This medicine gives me a chance to keep going. do what I want to do.”

“I’m so proud of Janelle,” her mother said. “She has a lot of accomplishments even though she is in a wheelchair or has a disability.”

Today, Janelle not only runs her own business, but also works at the Navy’s Office of Employment Equality.

“I hope that even as an artist people can see beyond the wheelchair and the disability,” Janelle said. “And see, he’s just someone chasing his dreams and making the most of the life he’s been blessed with.”

And as long as Janelle Fiesta can, she’ll keep celebrating her gifts.

About Terry Gongora

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