Tweets in the field of autism research in the first week of March came in like a lion, roaring – about gaps in clinical care for people with autism, gaps in understanding and gaps in evidence .
Mary Doherty, founder of Autistic Doctors International and consultant anesthetist at Our Lady’s Hospital in Navan, Ireland, tweeted about a new article in which she and her colleagues interview people with autism about their access to medical care. The majority said they had difficulty seeing a GP and had an untreated mental health issue; about a third said they had an untreated life-threatening illness.
New paper in @BMJ_Open from @DoctorsAutistic the research team
80% of #Autistic people find it difficult to get to a GP
69% report an untreated mental health issue
34% report an untreated life-threatening illness#AutisticHealthcare Questions#Autism understanding is the key
-Mary Doherty ???????? (@AutisticDoctor) February 23, 2022
“Adjustments for autism-specific needs are as necessary as ramps for wheelchair users,” the summary concludes. In a separate tweet from the Altmetric scores, which follows mentions of an article around the web, Doherty noted that it was good to see the article grabbing attention and shining a light on health care for autism.
-Mary Doherty ???????? (@AutisticDoctor) March 2, 2022
“There are some heartbreaking findings, but this should be a wake-up call to health services about how they are not caring for autistic patients,” wrote Felicity Sedgewick, associate professor of psychology at the University. education at the University of Bristol in the UK. a quote tweet.
Steven Kapp, professor of autistic psychology at the University of Portsmouth in the UK, tweeted about a free online conference on the condition’s dual empathy problem, scheduled for March 17.
Conference on the problem of dual empathy in autism, with many leading academics, organized by @e_mine_gurbuz and co-hosted by @DrBeatriz_Lopez and me with the support of @HRadders and @elinorlim_ and chaired by @milton_damian.
Free and online, 9.50am-5.30pm UK time, Thursday 17 March. https://t.co/GngsGFTw5I
—Steven Kapp (@drstevenkapp) March 1, 2022
For anyone unable to attend, it will be recorded, tweeted co-host Emine Gurbuz, also a lecturer in psychology at the University of Portsmouth.
Yes, it will be recorded and I will share it with you after the conference.
— Emine Gurbuz (her) (@e_mine_gurbuz) March 1, 2022
The double empathy gap can lead to a lack of connection, but some research suggests that social engagement prompts people’s brains to sync. Science writer Rolf Degen tweeted that science and the media have probably overestimated the idea of ”interbrain synchrony”, commenting on a new article on HyPyp, a hyperscanning python pipeline developed to analyze the phenomenon.
In recent years, neuroscientists and the media have made enthusiastic claims about the wonders of “interbrain synchrony.” It could just be another house of cards, held together haphazardly by tunnel vision and statistical trickery. https://t.co/xrxjXGUdE0 pic.twitter.com/7y4Nw01bdJ
— Rolf Degen (@DegenRolf) February 28, 2022
Guillaume Dumas, assistant professor of computational psychiatry at the University of Montreal in Canada, warned that it may be too early to “throw the baby [out] with bath water.
Baruch Eitam, an associate professor of psychology at the University of Haifa in Israel, commented that the literature on studying brain patterns in participants has “many aspects of what [statistician] Andrew Gelman would call it “dead on arrival”.
Skeptic Geoff Bird, professor of cognitive neuroscience at Oxford University in the UK, added: “I guess you give him the benefit of the doubt in case you’re convinced.”
That’s it for this week’s Community Newsletter! If you have any suggestions for interesting social posts you’ve seen in the area of autism research, feel free to email [email protected]
Cite this article: https://doi.org/10.53053/QNIY7140